Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

26 September, 2009

My Apartment Is A Prison



I'm at the coffeehouse I so often go to, but haven't been to since I began my current pain-management regimen.

I've stayed away because I haven't wanted to aggravate the pain in my legs by walking the four block round-trip to here and back home. I also thought it would be a bad idea to go to a noisy place that could do nothing but exacerbate my ever-present migraine.

But I'm here today. I came out... To discover that, as always, I'm right.

Today I awoke to a studio apartment that felt like a jail cell -- or, better, a holding cell. I've been in quite a few of those, so it's better for me to make a comparison to one of those since I know how it induces claustrophobia and the desire for -- to the exclusion of all other desires -- escape.

So I put a hat over my greasy hair and bellowed a Braveheart FREEEEEDOM! as I locked my apartment door behind me as I left.

My stilt-y, unbending legs tottered me here and I ordered my usual sixteen ounces of coffee, to which I added a quarter-ounce of half-and-half, seven heaping teaspoons of Sugar In the Raw, and two taps of powdered cinnamon.

I scored a spot on the love seat, but was bothered by the noise the few, but loud-talking -laughing -moving -breathing -existing, people made. So I moved to an outdoor table, where I sat and smoked until I couldn't take the annoyance of the line of people that qued up to ask me for a cigarette. (See this post for how I feel about would-be cig-bummers.)

back inside, it had quieted down in the time it took me to smoke two cigarettes. So I finished my coffee and got a refill to try to remedy my lethargy (which you can read about in my previous post).

Then the place filled in and the people who took the table behind me began playing dominoes or something like it. Something that involved blocks or tiles that someone was always hammering into the table or shuffling with enough force to crack to tabletop.

...Ug.

It's best for me to go home and lock myself safely back into my apartment.

...How long will I have to jail myself? Methadone: Take me away! ...Er, Set me free!

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22 September, 2009

I Am So Very Tire...... huh? Wha? Oh. Right. I'm Tired.



I need to make this short because I don't have the mental energy to make it long.

Yesterday I began Methadone. This week I take five mg every eight hours, and use fifteen mg of Oxycodone for breakthrough pain, up to four oxys a day. Klonopin remains at six mg a day, which is where it will be the rest of my life.

Taking any opiate that is foreign to your system will make you tired. And so the Methadone has got my brain feeling like mush and the couch crying whispering: "Just lay down for a second... Maybe shit your eyes for just a second. Then you can go do the chores you need to take care of. ...And holy shit -- I just happen to have that super-comfy pillow right here!"

Goddam couch. It's talked me into a lot of naps. But for some reason that seems suspect, right now, I'm fighting them. I suppose I'm trying to avoid them mostly because I don't want to get out of my sleep schedule, which is bad on its own for a fibromyalgian, and because I don't want to be stuck wide awake in the wee hours, when only televangelists and infomercials are on. ...And since televangelists are always selling shit, why don't we call the programs they're on Evangemercials or some such thing?

Before I sign off and likely heed the siren song my couch is singing, it occurred to me that my last post wasn't clear on a very key item: Why Dr. N couldn't just keep prescribing me more oxycodone. Here's why: Oxycodone is a short-acting opiate, and if a doctor prescribes nothing but a hell of a lot of short-acting opiates, the feds are likely to come get him/her.

So I needed/need a long-acting opiate -- Methadone being the best choice -- with which to supplement my drug diet so my doctor is safe, and so I don't have to pop a pill every two-and-a-half hours, and have no "pain coverage" overnight and, therefore, wake every morning with the screaming withdrawals.

...I don't know if any of this made sense. I do know it sure doesn't make sense to me because I'm so tired I can't go back and read what I just wrote.

Anyway: I'm sure my level of tiredness will go down as I become accustomed to Methadone -- which I will take ten mg of after one week, and then see Dr. N for further instructions. And I'm sure we're taking the right course of action.

And my couch agrees!

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10 September, 2009

A Toast To My Health!



Last evening I drank a bottle of Robitussin with dinner. It made a poor accompaniment to lime chicken with broccoli and rice.

Huh. Maybe I should have prefaced that by writing that I'm in a lot of pain -- or, I should write, I'm in more pain than I've become accustomed to since I've been on my current drug regimen. The daily 120 mg of Oxycodone, and more of which my doctor won't prescribe, isn't cutting it, and I won't be able to start on Methadone until I see my discomfited doctor later this month (who prefers her patients to be on Methadone -- and if she prefers it, I truly have every reason to believe that I will too, because she's one of the very few doctors I've seen since being diagnosed with fibro I have a scintilla of respect and trust for/in).

(Sorry for that extremely poorly constructed sentence. ...I use non-union labor.)

I've been told that getting off Oxy and onto Methadone (which doesn't have a catchy shorthand I can use for it -- "Meth" having been taken by... Meth) will involve withdrawal, so I desperately look forward to that. Perhaps this time I'll get simultaneous-shitting and -puking down to an art, or at least a science.

So I drank the Robo (10 mg of DXM and 100 mg Guaifenesin per dose times I don't know), for the DXM, which binds to similar receptors in the brain as opioids and so, I thought, might boost the effects of my Oxy -- or some such thing. I was shocked and awed to find that my pain didn't demand, later last night, that I take the day's last 30 mg of Oxy. However, I did wake up at 7 this morning in pain that made my eyes water for the hour-and-a-half it takes for my 30 mg morning dose of Oxy to kick in.

...Obviously, I'm off to the store sometime this week to get another bottle of the 'Tussin. I'll let you know how further adventures in Roboland turn out, and if it makes a nice mixer for vodka.

Cheers!

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27 June, 2008

A BIT OF NEWS FROM THE PAIN RELIEF NETWORK!



[This came to my inbox and I thought I'd pass it along and urge everyone who is able -- after donating all you can to me me me, of course (button's on the right) -- to give give give to PRN. The e-mail:]


Pain Treatment Advocacy Group Sues State of WA
Jun 25, 2008
By: Donna Gordon Blankinship
The Associated Press

SEATTLE - A pain treatment advocacy group filed suit Wednesday in federal court to challenge the restrictions Washington state officials have put on prescription pain medication

The nonprofit Pain Relief Network says the guidelines for prescribing narcotics, written by the Washington state Department of Health and published in March 2007, have influenced pain treatment across the country and have made doctors afraid to give opiate prescriptions[...]

Me (Calvin) again:

Get the full story using this link.

Donate to PRN using this link.

This post's title is a link to PRN.

...And sorry for the dearth of posts this month.

Family.

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06 May, 2008

RITALIN: IT'S NOT JUST FOR KIDS ANYMORE!



I feel like I'm beginning to live a childhood I never had, having just been prescribed Ritalin, since I never had ADD/ADHD/whatever the hell kids who won't sit at their desks and shut the hell up are "diagnosed" with these days. (The real problem: The kids don't function at all well in a stupidly structured environment and parents and teachers don't have so much as the inclination to deal with them on their wavelength. Thank you DSM-IV for letting bad parents and teachers off the hook... And I swear this is the only swipe I'll take at you.)

...Now, with any luck, I'll be able to reverse the cycle I've been in, and sleep for about eight hours a night and be awake for about sixteen during the day! I'm sure I won't know what to do with myself... But fear excessive masturbation may be involved.

...I took my first extended-release Rit about a half-hour ago, and drugs take one-and-one-half-hours to kick in for me. So I'll see if I can stay awake today.

Until it does kick in: Still so very, very tired...

UPDATE!: Here are the drugs I now take for fibro, generalized anxiety and chronic fatigue disorder:

OxyContin, 40mg daily
Klonopin, 6mg daily
Prozac, 30mg daily
Ritalin, extended release, 20mg daily

With any luck the Ritalin will help me take another pained step toward the shadow of my former self...

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17 April, 2008

TO EVERYTHING, THERE IS A SEASON!



And it's becoming spring in Whatever State I'm In. Which is making me horribly lethargic, apathetic, and given me hysterical pregnancy. I've been sleeping twelve hours of every day since the weather has gotten warmer...

No idea why the changes in weather make me feel awful (though pain is kept to 4/10 with OxyContin), but I have heard it's common for fibromyalgians.

So I'm writing to let you know I have no interest in writing.

Happy birthday!

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15 April, 2008

FIBROMYALGIA TREATMENTS: WHAT WORKS!



I'm posting this so, hopefully, readers who have fibromyalgia can get to this post quickly to find out what works and what doesn't. Here's what works:

1) NARCOTICS.

OxyContin, tailored to the dose you, personally, need, for instance. But different people in chronic pain need different narcotics. Which is to write, as I have before, that some fibromyalgians will benefit most from hydrocodone, some from morphine, and so on.

The take-away from this being that the only thing that will reduce your pain by an appreciable level is a narcotic analgesic. Fuck anyone and anything that touts a "natural" cure.

Well, I got ahead of myself: Fuck anything that says it's a "cure." By definition, fibro is incurable. If you thought you had fibro but it went away through one or another action(s), you didn't have fibro and please shut the fuck up because the people who actually have it are being hoist with your petard by the thousands.

My own mother told me about someone she knows who has fibro, but who does not experience daily, constant pain. I had to refer her to the exact diagnostic criteria to show her she had a hypochondriac (or wicked asshole) on her hands (and wasn't told the name of the person because I wanted to track her down and give her a taste of the pain she, despite "having fibro," wasn't in. ...Such is the insanity induced by my pain.)

Fibro is coming to encompass too many things that it is not because of inept doctors and moronic patients.

Anyone who knows anything about fibro is a pain specialist, pure, simple. And knows: Fibro is pain. Treat it with painkillers.

There are diets you can read about that claim they can cure you. If the diet cures you, you have Celiac's Disease, not fibro. Both cause quite similar symptoms.

Please, everyone who does not have fibro, shut the fuck up so fibromyalgians can be treated properly, so the disorder can get some goddam respect -- stop keeping us in the limbo of having been diagnosed with a pseudo-disorder, while you can simply cut gluten out of your diet and live pain-free, but unable to eat pizza.

...Trust me: Fibromyalgians feel your pain, douchebag.

2) NOTHING ELSE.

Only narcotic analgesics help people with fibro.

Sure, Lyrica may bring your pain down one number on the pain scale, but the extra fifty pounds you gain that it puts on your joints and vertebra are going to put your pain right back where it was.

Cymbalta: Doctors will be happy to give you this, along with thirty-or-so pills/injections that will do nothing or next to it, instead of prescribing you narcotics. (Pain relief from an NSRI. ...If I could laugh at that I wouldn't be able to catch my breath and drop dead, blue as a Smurf...)

However it is, by its weak ability to increase the amount of dopamine in one's brain (not by increasing norepinephrine, as most docs will say) also capable of bringing your pain down maybe one point on the scale.

But you'll still feel suicidally painful if you actually have fibro.

In short: Narcotics are the answer. Narcotics are the only treatment that works for fibromyalgia.

This must be accepted by doctors, and narcotic analgesic treatment must be insisted upon by patients (please see previous posts for all the crap I had to go through to finally get chronic opioid analgesic therapy).

If your pain isn't enough to make you cry your lungs out every day for a dose of morphine or oxycodone, chances are you don't have fibro and you're harming everyone who actually has the disorder. Find out what you really have, and don't let your doctor diagnose you as a fibromyalgian despite the fact you don't have a single trigger/tender point.

If your pain hasn't made you wish you were dead since it started, please get the correct diagnosis and shut the fuck up about fibromyalgia.

Please, as this disease becomes understood, let doctors and patients realize, together, the only effective treatment for it: narcs.

To anyone who can be helped with anything else enough to matter: You don't have fibro. You're not helping yourself by being misdiagnosed with fibromyalgia, and you're hurting everyone who has fibromyalgia by going with whatever bullshit treatment you're being given (I could go into cortisol here) and finding that it helps your so-called fibromyalgia...

I understand that fibro is irresistable to hypochondriacs... Fibro is quite an easy disorder to pretend you have if you do your homework.

The problems is that you fuckers are helped with placebos, with Lyrica, with Cymbalta -- you're in studies yourselves and keeping out true fibromyalgians and making sure that our treatment stays bullshit.

To all fibro-pretenders: Just let me press down with my thumb on a certain place in your lower back for about thirty seconds, and we'll know what you have and do not have.

[Jesus, did the ire rise today. And I've been happy all day, too. ...I never know what's in my head until I sneeze it out.

Pain: 4/5. Debilitating, the best it will get... though I may want to think about upping to 50mg Oxy next month... Still too soon to say for sure -- I need to see exactly what 40mg can do, and it's been only a week now.

Anxiety: 4/10. Debilitating, the best it will get.

I would not dare complain that my conditions are managed as well as they are... I believe I feel the best I possibly can.

Still, I do miss being able to lift more than ten pounds...]

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10 April, 2008

MIGRAINE!



I just woke up from a nap. Goddam my goddam head hurts so so so much ("faithful" readers can take pleasure in the fact this blasphemer is stewing in his own sin)...

...I fell asleep just before I was supposed to take my second dose of OxyContin, and am now waiting for it to kick in, having taken it within 30 seconds of waking -- four hours off schedule.

...The same migraine as every day, but unmitigated by drugs... Railroad spike through my right eye, another through the right temple... The skin and (seemingly) bone on the right half of my face and head firing nerves that yell loud as Godzilla pain pain pain... I can't stand the sound of my fingers hitting the keys but have to type, to do something to take my mind off the agony... Even if it won't won't won't work how could it ever... Pain jumps from the tips of my fingers, reverberates, amplifying itself every time it seems to bounce from one inner surface of my skull to another... Every square millimeter of the air attacking me like a million manta stings to the eyes through the simple act of seeing...

But in an hour all this will be a shadow.

How did I survive with these fucking migraines for so long without strong painkillers?

...Oh yeah, I was going to kill myself if Dr ML&S didn't intervene.

...It's a pity party! And only those who brought gifts can redeem their invitations...

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09 April, 2008

IF I HAD SKATED YESTERDAY!:



Yesterday I walked around the local skate park because the outdoor section just opened for the year. Then I walked around the local college's campus to see what I am missing now that I can't skate.

...Why the masochism?...

And, since I can't skate, I made up this story on what happened yesterday. I made sure the experience sucked so I wouldn't hate the fact that I'm now lame and can only walk.

...Maybe I need Heelys...

Anyway: "Yesterday":

Skating sucked yesterday... In the outdoor section, all the (wooden) ramps at the skate park were warped from the winter, and dropping in was like picking my way through a minefield... "OK I'll drop in here, have to miss those nails and that indentation (on the vertical part of the ramp, no less), then deal with the crack right before the fun box (at some parks not-so-aptly named), then immediately get my feet together for a 180 -- but have to jump before the exposed screw at the top of the box -- then land and navigate fakie (backwards) between the water puddles."

After only two hours of dealing with the not-so-fun boxes and treacherous ramps I ended up going to Lummox University. The place is even more of a skate park now than it was when I was a teenager, learning everything I know now. I was totally blown away: the perfect street course. Rails of all lengths and gradations of steepness, a huge gap to 180 over that allowed you to choose, by picking your launch spot, how far you needed to jump and how far you wanted to drop, and on and on.

And all within an area the size of a football field.

Why did I even go to the park? I already had jammed my left shoulder by misjudging my speed when launching to a disaster soul... I had no idea I would be going as fast as I was, since I hadn't dropped in on the ramp I used until that trick, and so I seemed to hang in the air after my jump, waiting to come down to earth so my skates could catch the ledge. My back skate did, but by then my front foot didn't know what to do with itself. I had almost launched the entire fun box, and I was straightening my skate out to land on the flat just when it caught the last half-foot of the ledge.

This made my front foot wash over the top of the ledge. which led to my entire body spinning ninety degrees atop the ledge, then to me taking the two-foot drop (from ledge to ground -- five feet for my shoulder) on my shoulder. At speed.

Back to the university:

I decided to give it a go at my favorite rail of all time -- an aluminum tube made smooth by thousands of previous grinds, hundreds of them my own -- long enough to make you proud you could actually lock in and ride out your grind for that long, but not long enough that if you fell you would be going too fast and hurt yourself (the rail runs down eleven steps).

I had a porn star (grind -- my balance mostly on the soul of my front skate, my back skate on the rail between my second and third wheels) locked in on my fourth try, but was a little off balance when I came off the rail fakie, my preferred may to dismount rails (the best-looking), with my left wheels not quite level with the ground. My boot was almost sliding along the concrete -- and all my weight was on that skate. This caused me to bend my knees until my ass almost touched the ground and my arms to spin like windmill blades as I attempted to get my balance onto my right skate.

Suddenly my left foot gave out entirely. My left skate's ankle strap exploded which, I soon found out, carved scrapes into my lower leg as it buckled into the skate. The scrapes on my lower leg, together, look like a shark bite.

(From pseudo-landing the grind to buckle explosion took only about two seconds, in which I covered a distance of about five feet.)

Naturally, I immediately removed the broken skate and heaved it into a wall while yelling FUCK! as loud as I could. I had almost proved to myself that I was perhaps three-fourths as good a skater as I had been almost a decade ago.

...My behavior is not kid-friendly in that it is completely childish, I thought as some parents who walked by gave me reproachful looks, holding their kid's head between them as though trying to insulate his mind from the word I had yelled. They turned away from me the moment I looked at them, vehement, likely afraid that my anger at botching the landing could be turned on them...

I calmed down an iota as I thought the situation over, seething while examining my skate: that's what the ankle strap is for: to break in a situation that would otherwise break your ankle. So I suppose I can't complain too much.

I should definitely use the broken-skate-thing as a reason/excuse to finally quit skating... But my christ it's harder to give up than smoking...

[Lots of fiction lately. I apologize, but guarantee it's more interesting than any presentation I could give of my actual life.

In case you're curious:

Pain seems to be about 5/10 with 40mg OxyContin daily, but more experience at this dose is, of course, necessary.

Anxiety with 6mg Klonopin daily: 5/10. A friend and I agreed a few days ago that "If you're not freaked right the fuck out all the time, you're not thinking hard enough."

...The things you let yourself believe to get by...]

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28 March, 2008

CHRONIC FATIGUE IS A BITCH!



I was up until about 6:00 this morning, and was woken up at precisely noon by my pain. I'm trying not to use sleeping pills anymore, and to get into some sort of natural sleep pattern.

Unfortunately, for someone with chronic fatigue syndrome -- which goes with fibromyalgia like peanut butter does with chocolate... In a world where the two can never be separated, though -- my natural sleeping pattern is probably one of the worst things for me.

I used to take, nightly, 200mg Trazodone, a Sonata and a Remeron. Taking all these allowed me to determine what time I would go to sleep, and kept me in dreamland for about seven or eight hours. Since I have been in Lummox, however, I have used these sparingly... Usually when I am trying to correct a botched sleep from the night before, and to go to sleep at a reasonable hour.

Which means that, tonight, I plan on taking a handful of Traz and a Sonata at about 11:00 to get my ass back on track. In the meantime, I probably will have to drink a lot of green tea -- my favorite caffeine delivery system -- simply to stay awake until then. What is absolutely fabulous is that caffeine ensures that my anxiety will kick up like a tornado in the Dust Belt. And the amazing height of my generalized anxiety disorder, when it's fed caffeine like coal used to be to locomotives, ensures that not even 6mg of Klonopin will be able to topple it.

Getting by on a daily basis and not feeling like shit is amazingly difficult sometimes. Even most of the time...

But it is funny that all these problems have caused me to become extremely self-aware... Mindful, in new-new-age-speak.

So there's always some good in the bad...

What I probably should do is simply let my person do what it will: stop taking caffeine, never touch another sleeping pill. But that would cause problems... I'd be awake when most of the US is asleep, and taking naps throughout the day... A freaking wreck.

--So I take the above back. What I really should do is get new prescriptions for Traz and Sonata (the Remeron is pretty useless). Then I should be able to sleep when normal people sleep and be awake when normal people are awake... And when grocery stores, restaurants, etc. are open, which I need to be able to patronize to remain alive.

...What to do...

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26 March, 2008

THE TENS UNIT: GREAT FOR MYOFASCIAL PAIN SYNDROME (TMJ-ISH), NOT MUCH ELSE!



"Temporomandibular joint disorder (TMJD, TMJ or TMD), or TMJ syndrome, is an umbrella term covering acute or chronic inflammation of the temporomandibular joint, which connects the lower jaw to the skull. The disorder and resultant dysfunction can result in significant pain and impairment.

...

"Muscle pain can sometimes be associated with trigger points in muscle tissue. These trigger points can be localized by digital palpation, both intraorally and extraorally. This is known as myofascial pain syndrome."

The above is from Wikipedia.

Here is how I use my TENS (transcutaneous electrical nerve stimulation) unit to help with my myofascial trigger points, which hurt like hell, curtail how wide I can open my mouth and cause me to bite down on my teeth extremely hard in my sleep, and probably grind them a bit (known as bruxism... One night I forgot to wear my bite block, which situates a plastic pad between my molars to keep them apart like parents would homicidal children riding in the back of the family van on a very long trip. In the morning I discovered that I had shattered my back-bottom-right molar into four pieces):

I place the two-inch-diameter electrodes (sticky pads) directly on my TMJ and turn up the juice. I electrocute the hell out of the joint for only about a minute every morning and night because I'm placing the electrodes right on my trigeminal nerve, which allows one to feel one's face (somewhat important... Even if one experiences only pain from it), and if I fuck that nerve up I'll end up looking like a stroke victim... But perhaps on both sides of my face.

I should note that all TENS units tell users specifically NOT TO DO THIS. Therefore, like just about anything else I do, I cannot recommend it to anyone else.

But oh sweet zombie jeebus how much it helps...

The trigger points remain painful to the touch, but I can open my mouth wider than I have been able to in years. The electrode-application seems to function as the most effective massage on earth. I probably would have to be massaged all day, just on my TMJ, to achieve the same results.

I'd rank the improvement in my facial pain from a 10/10 to a 4/10. Pretty damn amazing.

So I love my TENS unit dearly, even though it does absolutely nothing for any of my other trigger points or pains. The relief I get from my myofascial pain is enough to make me wish my TENS unit were a woman so I could marry her. What's more, I'd switch teams and marry it if it were a guy and we lived in Massachusetts. ...Well, as long as it (he) didn't have a mustache...

That written, DO NOT USE A TENS UNIT FOR TMJ OR MYOFASCIAL PAIN SYNDROME! (Following my motto, adapted from Gandhi: Cover the ass you want to see in the world.)

[It makes sense for the pain and anxiety scales to make a comeback now that I'm on 30mg of OxyContin and 6mg Klonopin:

Pain: 6.5/10.

Anxiety: 4/10.

I see Dr ML&S April 7, at which point I hope to have my Oxy dose increased, so my pain should decrease even more. At this point I will be treated, medically, as best as is possible. This will likely mean that my pain and anxiety will both be around 3.5/10. Still debilitating, but the best that can be done, and enough to make me happy. Ish.]

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14 March, 2008

HERE'S HOPING MY TENS UNIT WILL EASE MY FIBROMYALGIA!



Today I had my second-to-last physical therapy appointment. My therapist, who I refer to as Mary Cassatt, worked with my insurance and got me a TENS (Transcutaneous Electrical Nerve Stimulation) unit for free. Love her -- which explains why she gets a great name and people like Dr. Douchebag get names like Dr. Douchebag (those who follow this blog will know that he's the shrink who cut my Klonopin dose from 6mg to 4mg per day before he knew anything about my case. I've been super-anxious ever since he did that, and he doesn't care one bit. What a fucking douchebag...).

So I'm about to watch TV and electrocute the hell out of myself for the rest of the night. Should be fun!

...I'm also definitely getting used to the 30mg of OxyContin per day that I'm on. Yesterday (or today, to nitpick) I went to sleep at about 2:00 and woke at 10:00. Not bad. And I didn't feel like I had to dive under my bed's covers at 8:00 pm like I have every preceding day this week. Good stuff!

And today I don't feel tired or apathetic at all, plus I'm not getting motion sickness. Pretty sweet!

So I currently use only Oxy, Klonopin, Prozac, and a TENS unit to control my pain (from fibro) and generalized anxiety disorder (which is really, left unchecked, a 24/7 panic attack). And I think I may as well drop the Prozac. But I'll probably have to wait to get out of my parents' house to do that, since they figure I may as well take it since it may be doing something and it's cheap because I get the generic: fluoxetine.

But, the Prozac, I am all but sure, is doing nothing. Studies show that antidepressants are only slightly better than placebos. ...And I've been on every SSRI, SNRI, Gabitril, et al, and none of them helped. I have always needed Klonopin, and have been on large doses of benzodiazepines since age eighteen. It's the only thing that works for my anxiety at all and, therefore, the only thing I truly believe I should be taking for it.

So after all the crap with all my doctors -- I've seen about fifteen in all for my fibro -- I'm simply going to be on Klonopin, OxyContin, and use a TENS unit.

Very, very simple. The doctors I see and have seen, of course, had to make it as fucking hard as possible for me to get to this point -- trying probably around thirty drugs in all that didn't work, under-treating my pain and anxiety while doing so (except for Dr. L in DC. Guy is a genius, and provided me with the most stable period of my life by taking such good care of my GAD in my pre-fibro days).

To wrap things up: I have known for years that all I truly need are OxyContin and Klonopin. But it has taken years to get down to just these two (after I wean myself off Prozac/fluoxetine).

Most doctors do not listen. And most have their favorite therapies. And most hate to prescribe their patients Oxy and Klonopin because they're potentially addictive and can induce tolerance.

BUT NOT IN PEOPLE WITH FIBROMYALGIA AND AN ANXIETY DISORDER.

Doctors need to wake the hell up to the above reality.

Now for some electrocution!

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13 March, 2008

MUSIC TO SOOTHE SAVAGE FIBROMYALGIA: INTERPOL!



Still getting used to OxyContin... Though maybe a bit less tired, overall, today. Then again, I usually don't feel like I have to totally crash until 8:00, on the nose. If I do go to sleep then, I wake at midnight and can't get back to sleep until 4:00 or 5:00, then sleep until about noon.

...While I remain useless, please enjoy No I In Threesome:

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12 March, 2008

STILL GETTING ACCUSTOMED TO OXYCONTIN...!



I am so very tired...

Especially after going crazy in physical therapy. I am in pain, having a bit of a panic attack, and need some Klonopin and a nap.

Which is what's I'm going to take and what I'm going to do.

I should be accustomed to this side-effect (feeling logy) in a week or so.

In the meantime, this blog could be a bit boring, I'm afraid. But the excitement should return around Sunday.

In the meantime, I'll post what I can and try to make it interesting...

Hopefully I have interesting dreams while I sleep the clock around...

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09 March, 2008

FIBROMYALGIA + BAD SKATING = OW!



I went skating today. The first pic is my left knee, the second is my right:



Note how the left is already so swollen my patella is almost hard to make out.

I went for a disaster torque (grind): I went down a mini-ramp, jumped off a three-foot-high launch, and I actually had the trick -- on a ledge five-and-a-half-ish feet in the air, balanced between the third and fourth wheel of my frame and on my tweaked left boot. Then... Well, something happened.

I don't think it sunk in that I actually had the grind. It was stupid of me to try it in the first place because it was my second time out in two years... But a bunch of grommets were blocking the fun box and I had grown sick of running into and then yelling at them.

So when I came to the end of the ledge I didn't know how to land -- forward, backward? What if I just let things sort themselves out and drop straight down onto my knee and bash the smaller ledge below?

...The latter is what I went with.

...So the above makes it a good time to talk about how the OxyContin is working (I started taking it today because I was a little excited). I've taken two pills today, 10mg each (and have found out that taking 10mg of OxyContin means taking only about 8mg to 9mg of oxycodone over a period of time), and things seem to be well. I take another at bedtime. I may not have to take as much oxycodone in the time-release preparation because it provides round-the-clock relief. I won't be building up a massive migraine in my sleep every night...

However, the lower dose of oxycodone means that my IBS is... er, causing problems... (I promise never to discuss IBS in any detail.) But my pain is still about a 6/10... Unless you count my damaged knee and how it feels...

...Well, then I guess my pain would be a 6/10 nevertheless. Fibro puts one in such a state of pain that, as I've told many doctors, I'm sure I could take a bullet in the gut and hardly give a shit. ...The positive spin is that I would actually be able to drive myself to the ER with one hand and hold in my intestines with the other.

So I suppose my point, then, is rather well illustrated: Whatever I did to my knee to make it balloon like it has did not increased my pain one iota. It's simply impossible to bend the fucker.

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08 March, 2008

OXYCONTIN!: THE CLOSEST THING TO A CURE FOR FIBROMYALGIA?(!)



My apologies for not posting in a while. I spent the past few days at my younger brother's and couldn't post because it would have been rude.

So now I'm very tired and about to nap, sitting here, upright.

But I felt the need to write that I have been prescribed OxyContin, and look forward to starting taking it because I believe it is likely to be the best way to manage my pain. I'm going to start taking Oxy Monday because I'm going to go to the local skate park tomorrow. My pain is that much more tolerable, and my life that much better, that I can resume the activity that, after writing and sex, gives my life purpose!

...It's important to note, here, that doctors will tell you that narcotics will turn you into a zombie who never will leave his/her couch.

More bullshit(which is all you should expect to hear when a doctor talks about narcotic/opiate analgesics). When you take someone's pain level down to a tolerable level, they can stop being a zombie, get off the couch and do what they will. Before treatment the person was in too much pain to be able to move much. You take away the pain, you take away the impetus behind the person's near-immobility.

...I'm going to be taking 10mg pills every eight hours, so the dosing is more convenient... Better than taking five Percocets every three hours and fifteen minutes, anyway.

I just hope me taking 10mg of OxyContin doesn't mean I'll only be getting 30mg of oxycodone per day. That would seem to be a step back in my treatment, since I currently take 50mg of oxycodone per day.

Of course, you'll be able to read all about how well things go this week. But I'm cautiously optimistic!

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05 March, 2008

MUSIC TO SOOTHE SAVAGE FIBROMYALGIA: THE GO! TEAM!



My Internet connection is going to crap out at any second. This is my third try on this browser (sixth overall) to bring you The Go! Team: The Wrath of Marcie.


http://www.youtube.com/?v=aWvgPzfReMY


I'll write when I can be sure what I put up won't go down the Internet Memory Hole.

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04 March, 2008

CLEAN PISS!



I got a call today: My drug test came back quickly, and I'm clean... But for the oxycodone, of course.

Much rejoicing...

Dr ML&S will see me Friday, at which point I'll discuss upping my dose, and taking straight oxy instead of Percocet, which has Tylenol. Right now I take five pills a day, 10mg oxy, 325mg APAP (aka Tylenol) per pill. Fibromylagia is a disorder one has for one's entire life, incurable as of this writing (and I'm not holding my breath for one...).

So I need to be on oxycodone for the rest of my life. But here's the trick: Most doctors give you oxycodone or morphine or whatever in a preparation like Vicodin, Percocet, and on because they want to be able to catch you overdosing -- or at least catch you taking more than they had prescribed.

Here's how it's done: by prescribing oxycodone, morphine, etc pills that contain Tylenol/APAP. Four grams of Tylenol is an overdose. The whites of your eyes will turn yellow as my clean piss and you'll get liver damage for the rest of your life if you take more than that. And doctors definitely don't want you taking more than is prescribed.

So, daily I'm ingesting 1,625mg of APAP so my doctor can be sure that I won't take a megadose of oxy.

Why would I? I have a certain number of pills for a set number of days. If I take more one day I screw myself the next. And I think it's been established that I do not like pain, and so avoid it or, perhaps more accurately, elide it as much as is possible. I do so, now, by taking five Percs a day.

I would like to be prescribed oxycodone, nothing but, because APAP is worse for you than the oxy. In fact, taking APAP daily for the remainder of my life is bound to eventually compromise my liver.

Also, to purify my pills and take nothing but oxy I would only have to perform a simple cold-water extraction of it from pulverized Percs, five times daily. In fact, if I am to be prescribe nothing but Percocet, I plan on performing cold-water extractions of it to help my liver out.

(Google "cold-water extraction" and vicodin or percocet to know how this is done... But I can't recommend that everyone or even anyone do this because I don't want some fucker suing me because they are able to take an oxy overdose after performing extractions. And Tylenol does prevent that. But in this awful way: You'll die from a Tylenol overdose well before you'll die from having taken too much oxy.)

Of course, doctors will tell you that the APAP enhances the effects of oxy, so you have to take less of the narcotic itself. Pure bullshit. Narcotics come with APAP so doctors can easily know if you've tried to take too much of what you've been prescribed.

...And the "easy way" will land you in the emergency room, and you'll be lucky to live through your APAP overdose. Better you had OD-ed on oxy. Far easier to survive, and no permanent damage done to any of your organs, most likely.

(I do not endorse the taking of oxycodone by anyone but me. Is my ass covered now?)

The truth is that opiates/opioids are the safest drugs to take. If you take too much you'll fall asleep -- the only "negative" effect. However, if you're trying to kill yourself, I suppose it's a great way to go. You'll get high as Stalin was on power and syphilis -- unless you suffer from chronic pain and, therefore, can never get high off pain medication -- and die from respiratory depression.

But I have no idea how much oxy that takes. I would guess approximately one assload.

...And anecdotal evidence shows that heroin addicts live a damn long time. Their shit can be cut with strychnine and it's apparently safer than Tylenol.

...Was all the above simply a way to justify what will be my reasonable request for 30 more milligrams of oxy when I see Dr ML&S Friday, and to not have the oxy coupled with APAP? Why do I feel the need to justify it at all?

In any case, I hope I, at least, spread some pro-narc pro-propaganda...

I hope to write about my progress in physical therapy tomorrow... But if you've been following this blog, you know I often plan on writing about something and then get completely sidetracked.

Nothing like a good tangent... (And a good tangent, in my eyes, is any one that doesn't involve trigonometry.)

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03 March, 2008

PROBLEM SOLVED?(!)



I wrote a letter to Dr ML&S, delivered it this morning, and was taking another piss test this afternoon.

If this one shows up clean -- and I have every reason to believe it will -- he will continue to see me, and to prescribe Percocet.

Whew!

I would transcribe the note for you, but I don't have it. I believe it's now part of my chart at Lummox Family Medical (too lazy to see if that's consistent nomenclature for where I go to see Dr 9 and ML&S).

But what had pissed off Dr ML&S most about my previous test is that he thought I lied to him. I was honest when I said I had ganked a morphine from I won't say who, but didn't tell him I smoked weed.

...I didn't because I don't. So the letter I wrote described to him why I didn't tell him THC would show up in my piss: it didn't occur to me that it would or even could.

I also made sure to let him know that he saved my life, literally, because I was seriously contemplating suicide before he wrote the Percocet prescription. I also let him know of my incredible improvement in physical therapy.

So he's a great guy for letting me take another test. This results of this one should come back to me in two days. Then, when all is well, I will see the doc on Friday, at which point we'll discuss my situation since I saw him last. I plan on asking for 20mg more of oxycodone -- and to ask for it straight up -- without the added Tylenol. Since I'm going to need oxy the rest of my life, the last thing I need is APAP eating away at my stomach and liver.

So all should be well!

...What a freaking relief...

[Pain: 5/5.

Anxiety: 7/10.

And if you're visiting this site after being redirected from Wordpress: Welcome! Hope you like the new digs!]

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HOPEFULLY SNAP SHOTS MAKES THIS SITE EVEN MORE INTERESTING!



I just installed a tool called Snap Shots that enhances links with visual previews of the destination site, interactive excerpts of Wikipedia articles, MySpace profiles, IMDb profiles and Amazon products, display inline videos, RSS, MP3s, photos, stock charts and more.

Sometimes Snap Shots will bring you the information you need, without your having to leave the site, while other times it lets you "look ahead," so you can decide if you want to follow a link or not.

If the snaps annoy you, just click the Options icon in the upper right corner of the Snap Shot and opt-out.

I hope this service is useful to everyone -- but please opt-out if it bugs you.

Also, please let me know in Comments if there are any services you think would further enhance this site, or if anything about the layout bugs you.

Thanks all!



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