MOTIVATION!

History has taught us that pain can make anyone do anything...

I was walking the two miles home from J’s at, what I found out when I arrived home, was about eight a.m. on a Thursday.

I kept to the side of the road, freezing...

I woke up at J’s half-covered in a blanket, the XBox controller still in my hand. I must have passed out while navigating some goddam menu the console makes players go through. Leave it to Microsoft to make accessing a game as fun and easy as typing in a proper MS-DOS command.

The first thing I noticed, before opening my eyes and realizing where I was, was the extreme pain in my head. ...The same pain that's there every morning. I soon found that I was sitting upright... Still locked in the position I likely had been in when I first went to sleep.

Then the anxiety hit. And then I noticed I was shivering, and that J must have moved from the couch he had passed out on to his bedroom. For a minute I surrounded myself in the blanket I had -- made a cocoon out of it -- and laid on the couch he had occupied. I learned that leather likes to maintain its temperature, and that if it was going to warm up, it was going to have to steal from me heat I wasn’t producing.

My morning panic attack forced me into action. I don’t know why I thought it would be possible for me to go back to sleep under any circumstances. My drugs were back home; my pill-box was empty. I hadn’t planned on staying the night, and so I hadn’t brought my morning pills.

I needed ten milligrams of OxyContin and two or three milligrams of Klonopin immediately.

I searched J’s entire first floor for a phone. All I found were chargers for cordless devices I couldn't locate. ...I couldn’t be rude and wake J up so he could drive me home, so I decided to check to see if the weather was nice enough for me to walk home in.

...I had lied to myself, because I began walking down his driveway and up the road as fast as I could as soon as I stepped outside. I had known I was going to walk home even before I stepped out the door.

At least it wasn’t raining. However, whatever the temperature was, I felt if it was a few degrees lower I would have been able to see my breath.

...I tightened the ankle straps on my sandals to try to avoid getting blisters. ...This also locked in the gravel that already had crept beneath my feet. ...I couldn't make myself stop to shake out the pebbles because I couldn't suffer a drug-free moment I could avoid.

The sun was a murderer. It focused all of its rays on my right eye, where my daily migraines emanate from. I zipped up my jacket to my chin, put on the winter hat I had worn the night before, even though it had been about sixty degrees the day before. I wondered why I was so cold, both that morning and the night before, when the the level of magnesium in small tubes indicated I had no reason to be.

It passed the time as I walked up the big hill.

A car passed and I realized I was on the Walk of Shame, and I hadn’t even gotten laid the night before. And for the first time in my life I actually found it shameful to be walking home early in the morning in the same clothes I had worn the day before, freezing and disheveled. On all previous walks like this one I had been coming back from having sex, which I could never understand anyone being ashamed of.

My thoughts occupied me as I walked as fast as I could, head down against that bastard in the center of our solar system. The pain blared in my head like bad music trying to get Noriega out of a church and into an American prison... My panic attack forced me on.

Eventually, finally, I could see my house.

I pictured the two brown bottles... My Oxy and Klonopin, waiting for me on the coffee table next to my bed and its four blankets and comforter. Not close enough...

The sun hit my eye and I grabbed my head as though it had been pierced with an arrow... A person driving by in an SUV at the same moment probably thought a wheel had kicked a pebble in my face. Whoever it was didn't stop.

...Down the driveway, through doors, my pills were on their way to my stomach. I buried myself beneath my blankets and began to feel warm as I waited for them to kick in. As I did I thought of the fact that a large percent of the population in the Eastern time zone was beginning its workday. If the person in the SUV though he/she may have blinded or otherwise injured me, he/she couldn't stop because he/she was late for work... But the person likely didn't notice me at all because his/her mind already was there.

I envied whoever it was as I lay in the dark, twisted up in my blankets.

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IF I HAD SKATED YESTERDAY!:

Yesterday I walked around the local skate park because the outdoor section just opened for the year. Then I walked around the local college's campus to see what I am missing now that I can't skate.

...Why the masochism?...

And, since I can't skate, I made up this story on what happened yesterday. I made sure the experience sucked so I wouldn't hate the fact that I'm now lame and can only walk.

...Maybe I need Heelys...

Anyway: "Yesterday":

Skating sucked yesterday... In the outdoor section, all the (wooden) ramps at the skate park were warped from the winter, and dropping in was like picking my way through a minefield... "OK I'll drop in here, have to miss those nails and that indentation (on the vertical part of the ramp, no less), then deal with the crack right before the fun box (at some parks not-so-aptly named), then immediately get my feet together for a 180 -- but have to jump before the exposed screw at the top of the box -- then land and navigate fakie (backwards) between the water puddles."

After only two hours of dealing with the not-so-fun boxes and treacherous ramps I ended up going to Lummox University. The place is even more of a skate park now than it was when I was a teenager, learning everything I know now. I was totally blown away: the perfect street course. Rails of all lengths and gradations of steepness, a huge gap to 180 over that allowed you to choose, by picking your launch spot, how far you needed to jump and how far you wanted to drop, and on and on.

And all within an area the size of a football field.

Why did I even go to the park? I already had jammed my left shoulder by misjudging my speed when launching to a disaster soul... I had no idea I would be going as fast as I was, since I hadn't dropped in on the ramp I used until that trick, and so I seemed to hang in the air after my jump, waiting to come down to earth so my skates could catch the ledge. My back skate did, but by then my front foot didn't know what to do with itself. I had almost launched the entire fun box, and I was straightening my skate out to land on the flat just when it caught the last half-foot of the ledge.

This made my front foot wash over the top of the ledge. which led to my entire body spinning ninety degrees atop the ledge, then to me taking the two-foot drop (from ledge to ground -- five feet for my shoulder) on my shoulder. At speed.

Back to the university:

I decided to give it a go at my favorite rail of all time -- an aluminum tube made smooth by thousands of previous grinds, hundreds of them my own -- long enough to make you proud you could actually lock in and ride out your grind for that long, but not long enough that if you fell you would be going too fast and hurt yourself (the rail runs down eleven steps).

I had a porn star (grind -- my balance mostly on the soul of my front skate, my back skate on the rail between my second and third wheels) locked in on my fourth try, but was a little off balance when I came off the rail fakie, my preferred may to dismount rails (the best-looking), with my left wheels not quite level with the ground. My boot was almost sliding along the concrete -- and all my weight was on that skate. This caused me to bend my knees until my ass almost touched the ground and my arms to spin like windmill blades as I attempted to get my balance onto my right skate.

Suddenly my left foot gave out entirely. My left skate's ankle strap exploded which, I soon found out, carved scrapes into my lower leg as it buckled into the skate. The scrapes on my lower leg, together, look like a shark bite.

(From pseudo-landing the grind to buckle explosion took only about two seconds, in which I covered a distance of about five feet.)

Naturally, I immediately removed the broken skate and heaved it into a wall while yelling FUCK! as loud as I could. I had almost proved to myself that I was perhaps three-fourths as good a skater as I had been almost a decade ago.

...My behavior is not kid-friendly in that it is completely childish, I thought as some parents who walked by gave me reproachful looks, holding their kid's head between them as though trying to insulate his mind from the word I had yelled. They turned away from me the moment I looked at them, vehement, likely afraid that my anger at botching the landing could be turned on them...

I calmed down an iota as I thought the situation over, seething while examining my skate: that's what the ankle strap is for: to break in a situation that would otherwise break your ankle. So I suppose I can't complain too much.

I should definitely use the broken-skate-thing as a reason/excuse to finally quit skating... But my christ it's harder to give up than smoking...

[Lots of fiction lately. I apologize, but guarantee it's more interesting than any presentation I could give of my actual life.

In case you're curious:

Pain seems to be about 5/10 with 40mg OxyContin daily, but more experience at this dose is, of course, necessary.

Anxiety with 6mg Klonopin daily: 5/10. A friend and I agreed a few days ago that "If you're not freaked right the fuck out all the time, you're not thinking hard enough."

...The things you let yourself believe to get by...]

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MUSIC TO SOOTHE SAVAGE FIBROMYALGIA: THE ARCADE FIRE!

This is Intervention and Wake Up (performed at the T), my two favorite songs by The Arcade Fire.

I've seen these guys twice. The first time I saw them they were on their first tour, visiting the 9:30 club in Wash., DC. Watch out for the guy with the crazy hair, the big drum, the harpsichord, the guitar, the tambourine, the kitchen sink. At 9:30 he left the stage at the end of the show by climbing the wall somehow, swinging over to the balcony and going through a Staff Only door.

Until that show I had only listened to the (first) album a few times, and liked it quite a lot. Still, at the time I was into an all-Arts-&-Crafts-bands-all-the-time kick. But a friend of mine knew if he invited me I wouldn't turn him down (I owe that bastard) because I'll see any band, within reason.

(Wow. I could knock so many bands right now... Good thing fibro fog is preventing me, right now, from coming up with any bands I hate... And recalling bands I hate likely is further complicated by the fact that I don't listen to them or think about them.)

Moving along: Since the show at 9:30 I've loved the Fire intensely (my wordplay, especially when unintentional, makes me cringe). In my not-humble opinion (all who disagree are simply wrong), seeing Wake Up live will change your life forever, and much for the better. There's nothing like screaming/moaning at the top of one's lungs in tune with thousands of people... Cathartic.

The last time I saw them I knew I had fibro. I screamed and screamed.

Everyone screamed with me.

[I likely will not post tomorrow since I will be getting back, then, from a short trip I'm taking today. I'd rather not go, however, because I forgot to take my Oxy last night and wish I had died in my sleep and was on the coroner's slab right now instead of about to go someplace and have to put on a smiley... But I am proud of myself, at least, for not doubling-up this morning...

I'll be getting back here late tomorrow night. Traveling makes me super-anxious, so I'll be drunk as hell when I return and just crawl into bed. ...That's the plan at least.

PS: The above "drunk as hell" bit was a lie. I would never drink on OxyContin, Klonopin and Prozac. What am I, stupid, and with anxiety that can't be controlled, when travel is involved, even by the holy trinity (POK)? The nerve (of me to pretend I know what you actually thought after reading what I wrote)!

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FIBROMYALGIA HAS TAKEN AWAY MY ABILITY TO SKATE... BUT IS SOCIAL SECURITY DISABILITY TO BE 'AWARDED' SOON?(!)

Well, no more skating. I can’t stand the pain after falling more than a few times... And the slightest brush of a knee against a metal ledge when I miss a grind causes the joint to balloon (see prev. post).

So now I have to find another way to have fun.

Parkour? ...I need to find something that involves mortal danger (otherwise, where’s the excitement?), but causes less pain than busting my ass and knees from grinds...

Maybe I can get back into skiing... I’m hopefully about to move to Portland, near Mt. Hood and year-round skiing...

Of course, these are stupid fantasies. I haven’t come to accept the limitations fibro puts on my physical activity.

I must come to accept walking as the most strenuous activity I can do, and ten pounds as the most I can lift (no joke), and that with incredible pain.

Fuck.

Speaking of moving to Portland, I suppose my Social Security disability claim could be approved soon. Hopefully within a month, allowing me to move and once again live independently.

The waiting has become unbearable. The closer I come to being given disability benefits, the farther away it is in my sight.

...Days stretch like months... I watch the clock and urge it on but the hands move counterclockwise...

Which, naturally, makes me extremely anxious. A 10/10, as it always has been, or thereabouts, ever since I have had to live here in Lummox...

...Agony... Anxiety... Waiting...

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HERE'S HOPING MY TENS UNIT WILL EASE MY FIBROMYALGIA!

Today I had my second-to-last physical therapy appointment. My therapist, who I refer to as Mary Cassatt, worked with my insurance and got me a TENS (Transcutaneous Electrical Nerve Stimulation) unit for free. Love her -- which explains why she gets a great name and people like Dr. Douchebag get names like Dr. Douchebag (those who follow this blog will know that he's the shrink who cut my Klonopin dose from 6mg to 4mg per day before he knew anything about my case. I've been super-anxious ever since he did that, and he doesn't care one bit. What a fucking douchebag...).

So I'm about to watch TV and electrocute the hell out of myself for the rest of the night. Should be fun!

...I'm also definitely getting used to the 30mg of OxyContin per day that I'm on. Yesterday (or today, to nitpick) I went to sleep at about 2:00 and woke at 10:00. Not bad. And I didn't feel like I had to dive under my bed's covers at 8:00 pm like I have every preceding day this week. Good stuff!

And today I don't feel tired or apathetic at all, plus I'm not getting motion sickness. Pretty sweet!

So I currently use only Oxy, Klonopin, Prozac, and a TENS unit to control my pain (from fibro) and generalized anxiety disorder (which is really, left unchecked, a 24/7 panic attack). And I think I may as well drop the Prozac. But I'll probably have to wait to get out of my parents' house to do that, since they figure I may as well take it since it may be doing something and it's cheap because I get the generic: fluoxetine.

But, the Prozac, I am all but sure, is doing nothing. Studies show that antidepressants are only slightly better than placebos. ...And I've been on every SSRI, SNRI, Gabitril, et al, and none of them helped. I have always needed Klonopin, and have been on large doses of benzodiazepines since age eighteen. It's the only thing that works for my anxiety at all and, therefore, the only thing I truly believe I should be taking for it.

So after all the crap with all my doctors -- I've seen about fifteen in all for my fibro -- I'm simply going to be on Klonopin, OxyContin, and use a TENS unit.

Very, very simple. The doctors I see and have seen, of course, had to make it as fucking hard as possible for me to get to this point -- trying probably around thirty drugs in all that didn't work, under-treating my pain and anxiety while doing so (except for Dr. L in DC. Guy is a genius, and provided me with the most stable period of my life by taking such good care of my GAD in my pre-fibro days).

To wrap things up: I have known for years that all I truly need are OxyContin and Klonopin. But it has taken years to get down to just these two (after I wean myself off Prozac/fluoxetine).

Most doctors do not listen. And most have their favorite therapies. And most hate to prescribe their patients Oxy and Klonopin because they're potentially addictive and can induce tolerance.

BUT NOT IN PEOPLE WITH FIBROMYALGIA AND AN ANXIETY DISORDER.

Doctors need to wake the hell up to the above reality.

Now for some electrocution!

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STILL GETTING ACCUSTOMED TO OXYCONTIN...!

I am so very tired...

Especially after going crazy in physical therapy. I am in pain, having a bit of a panic attack, and need some Klonopin and a nap.

Which is what's I'm going to take and what I'm going to do.

I should be accustomed to this side-effect (feeling logy) in a week or so.

In the meantime, this blog could be a bit boring, I'm afraid. But the excitement should return around Sunday.

In the meantime, I'll post what I can and try to make it interesting...

Hopefully I have interesting dreams while I sleep the clock around...

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PAIN, ANXIETY OFF THE CHARTS!

"Today I really struggle[d] with my fibromyalgia..."

And that's after taking (so far today):

200mg Ultram (does nothing, hoping for placebo effect... Anything, somehow...)

4mg Klonopin, can't take any more today, so I'm up Shit Creek without a flotation device.

150mg Vistaril, something my quack shrink, Dr Douchebag, gave me when he took away 2mg Klonopin daily (knocked me down from 6mg to 4mg on my first visit, practically as a way of saying hello). I think it's a fucking antihistamine. Christ...

8mg Zanaflex, just taken out of desperation. Zanaflex is supposed to reduce muscle spasticity. Joyous drug...

All this to try to tolerate being alive on this foul day as I have no doc to go to -- Dr 9 is on vacation, so I can't go in for a shot of Demerol or even an IV of Benadryl... Goddam it I'd take anything to sleep or be in less pain or... Christ, not be the thing I am now.

Anxious about the What if the Pain Center doesn't help me this Friday? I'll be totally, completely fucked.

And the pain, I cannot stress enough, is unbearable. I can't think of anything else and it's the one thing I don't want to think about...

Now I can't write any more. Too much being upright for today.

I hope to post tomorrow and the next -- off Friday for the Center appt. -- and then to write Saturday with great news. Hopefully of an oxycodone script large enough to kill a horse, but simply make my daily life bearable.

Viva hate...

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